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Here I sit so alone discouraged as life goes on around me and feeling totally hopeless. So hopeless about this condition that every night I wish never to wake the following day. I suffer from HIGH cortisol levels and some days (more than others ) experience fatigue, heavy, heavy eyes, have added on 20% body weight (so, so sad about it) heavy sleep pattern at night for first hour and then wide awake and happy for that brief time and force myself to back to bed, emotions and anxious most of the time leading to tears, quite high blood pressure and am totally isolated from family and social interactions. So alone in this world. I also have necrosis of the jawbone and suffer infections. This necrosis was a result of the osteoporosis medication I am taking and only 3 in 100 develop it but I was the chosen one. Please someone tell me out there that there is hope.
The medications that my doctor (women’s health doctor) gave me only after having the dutch test and adrenal fatigue was confirmed is having adverse effects for me and have had to stop them as some of the calming drugs make me comatose. The medications prescribed are as follows however I have stopped taking many of them because of my reactions. I can tell you more about it if you want to ask I will expand my thoughts on everything I am experiencing
Magnesium 200mg -1x B50 Complex -3x Vitamin C 1,000mg-2x
Immune 7 -1x Iron 300mg -1x Cortisol Manager -2x
Catecholecalm -2xAs strange as it may sound when I do strong cardio workout my days are always better and the days that I rest are awful. There is no rhyme or reason as I can go to the gym daily and experience much better days but I choose to give my body a rest on some days and I do believe I just suffer more on those days. I am convinced that “stress” from family and others have caused this as my symptoms increase when faced with family issues.
Someone out there can you relate. Someone out there can you actually tell me there is an end to this all or should I just accept my fate and give up.
Oh, I am 64 year old vibrant women who was always active physically and loved life and people and would love to make friend of each of you who responds.
LizThis is Mike , Liz’s husband. It really is as Liz describes the symptoms, very discouraging as the medical doctors and the endocrinologist stated that adrenal fatigue is not a real disease, but they don’t tell us then what is the problem?
I am starting to think it may be cushing’s syndrome, which is medically accepted as a disease, and we will discuss this with our new family doctor next week. Hopefully we can be steered in the right direction.
FYI, the supplements containing Ashwaganda and L-Theanine made Liz tired rather than calm, anybody else experience the same?
MikeHi Liz, I’m really sorry to hear that you have had such a difficult time. Stress could certainly be a factor. You say that you feel better on the days that you work out and worse on the days that you don’t – could it be that intense workouts are draining your energy and perhaps causing you to feel tired on your ‘no-workout’ days?
I would consider speaking to an integrative/functional doctor. They can run more detailed hormone tests (including a few that Fawne mentions in her book) that might give a deeper picture of what’s going on.
In the meantime, have you tried strategies to reduce your stress? Deep breathing, meditation, walks in nature.. all these things can help. And perhaps some of the underlying stressors need to be removed from your life. Cut out the people who are making you so stressed out, or at least speak/write to them about what their behavior is doing to your health.
Just a quick inquiry if there is a place that one may go like a private hospital or wellness centre and stay there until their adrenal fatigue is under control and monitored. It would be somewhat like a retreat where one goes and there is a organized plan for the day and meeting and group discussions with other patients. Just curious??????
Liz, my name is Susan and I know how you feel, like you’ve been ill for so long and docs can’t even help.
But we can get better. I had a 6 moth remission from Adrenal Fatigue for 6 moths in 2006 when I found out my c’s and my Fm’s is in actuality Adrenal Fatigue.
After 6 moths of great remission I just thought I could eat a little bad here and go to bed late here and there so i ended my own remission but it is possible to get back.
There are a few people on utube making videos of how they came back from adrenal fatigue. How healthy they are and feel great.
There are so many of us out who are searching for that right balance and we will find it.
I am 50. Been ill since I was 20 and I KNOW there is a way to feel healthy again. I am glad you have your hubby James there for you.
If you would like to talk more closer I am 253-632-433
My post got sent before I had a chance to finish.
My phone is 253-632-4366
I think we need a system to be each other’s support and unfortunately the forum’s are not used enough by us.
I hope we can get a room. An adrenal Fatigue room,for us to talk. And give each other support and tips.
Sending you, Liz, her hubby, and ANYONE else dealing with chronic illness, like cfs, fms and adrenal fatigue a big hug of well wishes and hopes to be able to talk closer than messages.
Oh, and my previous message broke off before I could fix my phone number. If you have adrenal fatigue, I do too. I was diagnosed with cfs and fms which is really AF my phone number is 253-632-4366. Maybe we can be each other’s support.
I’m glad I found this forum. Like you, I feel like I’ve been ill forever and just long for one day of feeling normal and healthy again.
For 25 years, since my last child was born, I’ve been plagued by anxiety, panic attacks and depression. I know this has put severe stress on my body and as a result I’ve felt ill for about 12 years. Not constantly, but I have flare-ups every six months or so or when there’s new stress in my life. This year has seen yet another move to another country, more stress and eight months of feeling ill.
The Doctors aren’t helpful and although I’ve been on various medications I’ve found that healthy and stress-free living helps the most. I don’t take anything now apart from vitamins.
Talking about going away to a wellness centre to recover, that would be wonderful! What I have found that helped me in the past is going away with my husband to somewhere remote and peaceful, no technology, just walking in nature and LOTS of resting.
Hope you find a way to recover your health. Please keep in touch. We all need to help each other where we can.so glad to find you at last but unfortunately it is too late to get involved with my adrenals as I am going in for a rare serious surgery this Tuesday, Nov 7th and have no idea if I make it not. The surgery is a direct result of talking drug “Prolia” for osteoarthritis and three doctors missed it until it was too late and now this surgery is deemed very serious. “Yes” to add to my problem is this adrenal fatigue which is extremely high on the charts but not high enough for cushing disease.
Please say a little prayer for me and I will keep this number if I can reach later (if alive) for help. Thanks you, hugs to you Liz My phone number is 250-495-4442
You WILL be alive, Liz. You are strong inside and this is NOT your exit. Try to put your fear and anxiety in a box in your brain and shove that box behind everything.
Compartmentalize it. Put your negative thoughts and fears inside the box and close it lock it and shove behind everything and focus on being relaxed and positive. And after you’ve come out of surgery just take it slow and easy. Take it one minute at a time.I’ve never heard of Prolia and I’ve been diagnosed with Osteoarthritis since 2006. You should see my hands! My face and body look younger than what I am, 50 years old but my knuckles on my hands!! Whew! They are all gnarled like an 80 year old. My docs are even impressed. I don’t believe it’s OA anyway. It’s an inflammatory reaction from foods from what our adrenal glands release. Our Adrenal Glands have messed up our digestive system so bad.
It’s NEVER too late to help the Adrenal Glands heal. If at 50 years I am actually getting relief bc of addressing my adrenals when they’ve been so severely fatigued since I was 20 years old. That’s 30 years of my Adrenal Glands not getting the help they needed till now. I know the adrenals are healable.
My prayers and thoughts are with you, tonight and through your surgery tomorrow and afterwards for your recovery. Just try to take deep relaxing breaths in and try to release your fear and negativity with the release of your breath. Imagine a bright white light will protect you throughout your surgery and you will open your eyes when doctors are done to see your husband and your loved ones around you.
Let me know how you are feeling when you are able to. You’ll be just fine. Prayers have started and will keep coming and coming.
Liz. Hang in there kid. I understand what you’re saying. I get that. I’ve been dealing with it for 4 years and three times gave myself setbacks. That so sucks. I’m just now getting back to par. Unfortunately it’s a long road but you will get there.
What has helped me is a Chiropractor who is into health and wellness and he has been a God send. My first appointment he nailed all my issues and told me why. (You’re under a lot of stress, you’re not eating enough, you’re not sleeping right, have you suffered a major loss or lost a loved one.?) I told him I had just lost my wife to cancer last year (which was in 2013) after a over seven year battle. He said (Ohhh! as in Bingo!) He looked me in the eyes and said “Don’t worry, we’ll get you back to par. It’ll take some time but we’ll get you back to your old self.”
He diagnosed me with Adrenal Fatigue and Hypothyroid. He also told me my thyroid was near red line it was that low.I’ve had to so alter my life style and that’s o.k. But when I had my Chiropractor tell me that if I had any commitments to get out of them and another doctor (MD who practices natural health and wellness) tell me if I didn’t slow down my body would shut down. That was the sign that I was over doing it. It’s a long story what caused it because it was multiple things over a long period of time.
It seams you are on supplements and not medication. That’s a good thing!
Eat whole foods, grass fed/organic meats, no sugar, no coffee, no processed/fast foods, no negative people in your life, learn to say no, no gluten, stay away from stressful situation and people, eat healthy fats and only light exercise. Learn to listen to your body. You’ll get there.
Take it one day at a time. You will get better.
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